Grassroots campaigners paved the way for the modern patient advocacy movement, which is becoming increasingly sophisticated.
The Belgian DPA has imposed a fine of €2000 on a non-profit association that provides specialized nursing care for failure to comply to the access request of a data subject. The data subject had requested access to her personal data, as well as the erasure of her data, after receiving a political email from the delegated administrator of the organization. Evidence suggests the association did not act on these requests. In her decision, the Belgian DPA also orders the nonprofit association to meet the demands of the data subject.
By European Federation of Pharmaceutical Industries and Associations
By European Society of Cardiology
The latest data on the main causes of death after stroke will be presented at ESC Heart & Stroke 2020. The international conference of the European Society of Cardiology (ESC) Council on Stroke is endorsed by the European Stroke Organisation (ESO).
Drug-makers have only recently started to give drug-takers a say in how their medicines are made, turning patients into a new generation of experts.
The FEAM European Biomedical Policy Forum – with the support of Cancer Research UK – is delighted to welcome you to the next annual lecture 2020 on ‘Cancer & Immunotherapy: greatest challenges and novel therapies inspiring European citizens’.
Hosted by Eurochild, the webinar aims to introduce and start a discussion with Eurochild’s membership on the CarePath project, a two-year initiative that aims to develop an integrated approach for the protection of children ageing out of care in EU, empowering professionals and public authorities towards trauma-informed approaches.
The Information Commissioner’s Office (ICO) has fined a London-based pharmacy £275,000 for failing to ensure the security of special category data.
Doorstep Dispensaree Ltd, which supplies medicines to customers and care homes, left approximately 500,000 documents in unlocked containers at the back of its premises in Edgware. The documents included names, addresses, dates of birth, NHS numbers, medical information and prescriptions belonging to an unknown number of people.
An overview of how auditors across the European Union scrutinise public health has been published today by the European Court of Auditors (ECA) on behalf of the Contact Committee of EU supreme audit institutions (SAIs). Altogether 24 SAIs have contributed to this second Audit Compendium of the Contact Committee.
The Norwegian Data Protection Authority has issued an administrative fine of EUR 49 300 to the City of Oslo for having stored patient data outside the electronic health record system at the city’s nursing homes/health centres from 2007 to November 2018.